RARE Navigator Pilot Program Aims to Eliminate Critical Gaps in Support for Patients and Families Newly Diagnosed with a Rare Disease

This post was originally published on this site

The rare disease patient advocacy organization Global Genes, has launched a pilot program with Corewell Health Helen DeVos Children’s Hospital (HDVCH) in Grand Rapids, Mich., to address gaps in support faced by newly diagnosed patients and families. WASHINGTON, Sept. 5, 2024…