Global Genes and STXBP1 Foundation are working with Children’s Hospital of Philadelphia on a multi-site natural history study, the STARR study, to use the RARE-X research and data collection platform to collect patient-reported and patient-provided data for STXBP1-related disorders, a…
Global Genes and STXBP1 Foundation Enter Partnership to Use RARE-X Research and Data Collection Platform for Natural History Study
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