Global Genes’ research program, RARE-X, launches Pompe Consortium, gathering together individuals with rare diseases, advocacy organizations, biopharmaceutical companies, and academic researchers, to support patient-owned data collection and aggregated data sharing with patient community,…
RARE-X Launches Pompe Consortium to Support Patient-Owned Data Collection and Aggregated Data Sharing with Patient Community, Biopharma and Research Collaborators
This post was originally published on this site